Radiation
National Association of Radiation Survivors
(800)798-5102
9 a.m.-5 p.m. (Pacific)
RARE DISORDERS*
*A rare disorder is defined as a disorder that affects less than         1 percent of the population at any given time.

American Behcet's Disease Association
(800)723-4238
9 a.m.-5 p.m. (Pacific)

American Cleft Palate-Craniofacial Association/Cleft Palate Foundation
(800)242-5338
CLEFTLINE operates 24 hours.
Spanish-speaking operators available. 8:30 a.m.-4:30 p.m.

American Leprosy Missions (Hansen's Disease)
(800)543-3135
8 a.m.-5 p.m. Monday-Friday

American SIDS Institute
(800)232-7437; (800)847-7437 (in GA)
9 a.m.-5 p.m. Leave recorded message after hours (staff on call).

Amyotrophic Lateral Sclerosis Association (ALS, Lou Gehrig's Disease)
(800)782-4747
7:30 a.m.-4:30 p.m. (Pacific)
Leave a recorded message after hours.

Batten's Disease Support and Research Association
(800)448-4570
8 a.m.-5 p.m. 24-hour recording

Charcot-Marie-Tooth Association
(800)606-2682
8:30 a.m.-5 p.m.

Cooley's Anemia Foundation
(800)522-7222
9 a.m.-5 p.m.

Cornelia de Lange Syndrome Foundation, Inc.
(800)223-8355
(800)753-2357 (U.S. and Canada)
8 a.m.-5:00 p.m.
Leave a recorded message after hours.

Cystic Fibrosis Foundation
(800)344-4823
8:30 a.m.-5:30 p.m.

Epilepsy Foundation of America
(800)332-1000
(800)213-5821 (Publications)
9 a.m.-5:30 p.m. Monday-Thursday
9 a.m.-3 p.m. Friday

Epilepsy Information Service
(800)642-0500 (voice mail after hours)
8 a.m.-5 p.m.

Fibromyalgia Network
(800)853-2929
8 a.m.-4 p.m. (Mountain) Monday-Thursday

Histiocytosis Association
(800)548-2758
9 a.m.-4:30 p.m.
Voice mail after hours.

Huntington's Disease Society of America, Inc.
(800)345-4372
9 a.m.-5 p.m.

International Rett Syndrome Association
(800)818-7388
9 a.m.-5 p.m.

Les Turner Amyotrophic Lateral Sclerosis Foundation, Ltd.
(888)ALS-1107
8 a.m.-5 p.m. (Central)

Multiple Sclerosis Association of America
(800)532-7667
9 a.m.-5 p.m., Monday-Thursday

Multiple Sclerosis Foundation
(800)441-7055
9 a.m.-7 p.m.

Muscular Dystrophy Association
(800)572-1717
9 a.m.-5 p.m. (Mountain)

Myasthenia Gravis Foundation
(800)541-5454
8:45 a.m.-4:45 p.m. (Central)

National Down Syndrome Congress
(800)232-6372
9 a.m.-5:30 p.m. Recording after hours.

National Down Syndrome Society Hotline
(800)221-4602
9 a.m.-5 p.m.

National Hansen's Disease Programs
(800)642-2477
8 a.m.-4:30 p.m. (Central)

National Hemophilia Foundation
(888)463-6643
9 a.m.-5 p.m.
Summer: 9 a.m.-5:30 p.m. Monday-Thursday, 9 a.m.-3 p.m. Friday

National Lymphedema Network
(800)541-3259
9:30 a.m.-5:30 p.m. (Pacific)
Leave recorded message.

National Marfan Foundation
(800)862-7326
8 a.m.-4 p.m.

National Multiple Sclerosis Society
(800)344-4867
9 a.m.-5 p.m.

National Neurofibromatosis Foundation
(800)323-7938
9 a.m.-5 p.m.

National Organization for Albinism and Hypopigmentation
(800)473-2310 (voice mail only)

National Organization for Rare Disorders
(800)999-6673
9 a.m.-5 p.m.
Leave recorded message after hours.

National Reye's Syndrome Foundation
(800)233-7393
8 a.m.-5 p.m.
Leave recorded message after hours.

National Sjogren's Syndrome Association
(800)395-6772
9 a.m.-3 p.m.

National Spasmodic Torticollis Association
(800)487-8385
9 a.m.-5:30 p.m. (Pacific)

National Tuberous Sclerosis Association
(800)225-6872
8:30 a.m.-5 p.m.

Neurofibromatosis, Inc.
(800)942-6825, 24-hour message line

Office of Orphan Products Development, Food and Drug        Administration
(800)300-7469
8 a.m.-4:30 p.m.

Osteogenesis Imperfecta Foundation
(800)981-2663
9 a.m.-5 p.m.

The Paget Foundation for Paget's Disease of Bone and Related Disorders
(800)237-2438
9 a.m.-5 p.m.

Prader-Willi Syndrome Association
(800)926-4797
9 a.m.-7 p.m..

Sickle Cell Disease Association of America, Inc.
(800)421-8453
8:30 a.m.-5 p.m. (Pacific)
Recording after hours.

SIDS Alliance
(800)221-7437
9 a.m.-5 p.m.

Sjogren's Syndrome Foundation, Inc.
(800)475-6473 (voice mail only)
9 a.m.-5 p.m.

Spina Bifida Association of America
(800)621-3141
9 a.m.-5 p.m.

Spondylitis Association of America
(800)777-8189
8 a.m.-5 p.m. (Pacific)
Leave recorded message after hours.

Sturge-Weber Foundation
(800)627-5482
9 a.m.-3 p.m.

Support Organization for Trisomy 18, 13 and Related Disorders
(800)716-7638
Leave recorded message.

Tourette Syndrome Association, Inc.
(800)237-0717
9 a.m.-5 p.m.

Treacher Collins Foundation
(800)823-2055

Turner's Syndrome Society of the United States
(800)365-9944
9 a.m.-5 p.m. (Central)

United Cerebral Palsy Association
(800)872-5827
8 a.m.-5:30 p.m.

United Leukodystrophy Foundation
(800)728-5483
8:30 a.m.-5 p.m., 7days (Central)

Wegener's Granulomatosis Support Group, Inc.
(800)277-9474
8:30 a.m.-5:00 p.m. (Central)

Wilson's Disease Association
(800)399-0266 (voice mail)
REHABILITATION
See also DISABLING CONDITIONS and PARALYSIS AND SPINAL CORD INJURY

ABLEDATA
(800)227-0216
8:00 a.m. to 5:30 p.m., Monday-Friday

National Institute for Rehabilitation Engineering
(800)736-2216
9 a.m.-5 p.m.

Phoenix Society for Burn Survivors
(800)888-2876
9 a.m.-5 p.m.

United Ostomy Association
(800)826-0826
6:30 a.m.-4:30 p.m., Monday - Thursday
6:30 a.m.-3:30 p.m., Friday (Pacific)
RURAL
Rural Information Center Health Service (RICHS)
(800)633-7701
ric@nalusda.gov (E-mail)
8 a.m.-4:30 p.m., Monday-Friday